Don’t forget to donate to FD-UK while you are shopping for Birthdays or essentials on Amazon please shop via amazonsmile and select FD-UK and they will donate 0.5% of your purchase, to us, it will not cost you anything! It is the gift that keeps on giving, thank you.
Subject to our annual AGM in May 2021, we have nominated a new chair Dr Shara Cohen (pictured on the left) and we look forward to the exciting changes she will bring to FD-UK. We would also like thank Simeon Cohen from the bottom of our hears for all his hard work as Chair over […]
Our committee member Rosalind Jacobs celebrates her daughter Natasha 30th Birthday (Pictured left Natasha Lawrence with husband JC). Ros recounts “Even with Covid and restrictions, the sun was going to shine on the two breakfasts and two lunches to celebrate our daughters Natasha’s special 30th birthday. We have had good times a stressful times over […]
In May 2021 we hosted and raised money through a professional online cookery class with our kids, we all made a scrumptious fruit crumble together on zoom, which the family could enjoy. We had participants from age 4 to teenagers and we all learnt to learn to cook a crumble and the best bit was […]
Familial Dysautonomia UK is delighted to announce that we have formed a new association with the Maccabi (GB) Southern Football League
The FD Day 36th Annual virtual conference, run by the New York Centre for Familial Dysautonomia was attended recently by several FD families in June 2021. Our members of our FD-UK community enjoyed and got great value of this years’ annual conference online, where they showcased FD families, discussed FD and their Covid Vaccine research […]
Sarah Landau, is currently a Trustee and Treasurer of FD-UK and she has held key positions at FD-UK for the last 25 years. Sara recently won the Jewish Volunteering Network (JVN) lifetime volunteering award for her constant support of FD-UK
Our FD-UK committee member Rosalind Jacobs, responsible for FD-UKs ‘patient communications’ has also been selected as carer governor for UCLH.
During the pandemic our Vice-Chair Dr Shara Cohen has used her digital expertise to recreate our website and make it more intuitive, also creating a new donation wall where you can donate and dedicate to a loved one or in memory of someone, if you wish.
Dr Axelrod was part of our lives for many years. She made FD her total life and with this she brought hope and support to her patients and their families. She researched and gained knowledge over her career which gave the FD patient a better quality of life and with this she was there to support you 24 hours a day 7 days a week.