About Us

About Us

​Familial Dysautonomia United Kingdom (FDUK) is a UK charity, set up over 40 years ago to help support sufferers of FD and their families.

Formally known as the Dysautonomia Society of Great Britain (DSGB) the charity strives to raise awareness of the condition in the community. Its aim is also to raise money to fund individual medical needs and requirements, as well as pay for specialised doctors to cone to London to hold clinics to assess the FD sufferers as well as guide UK doctors in the specialised expertise.

What we do

The Society supports medical research and clinical care by:

  • Helping to fund research into FD by scientists internationally.
  • Provide grants for
    • FD children to obtain additional therapeutic treatment, medications equipment they require, not provided by the NHS.
    • FD children to travel abroad to obtain expert advice, diagnosis, treatment or surgery when the same is not available in the UK.
    • British speech therapists, physiotherapists and other health auxiliaries to go on advanced training programs in the treatment of FD.
    • Travel of specialists from the Dysautonomia Centres in New York and Israel to visit and lecture to medical specialists, therapists and nurses in London.
    • Train UK specialists and therapists in the treatment of dysautonomia.
  • The Society also provides a continual flow of information to members, parents, professionals and anyone requesting medical, educational or professional information on FD.

Who we are

Main Committee:

  • ​Trustees: Sara Landau / Anthony Landau / Bryan King
  • Chair: Simeon Cohen
  • Vice Chair: Dr. Shara Cohen
  • Secretary: Dr. Jeffrey Freilich
  • Treasurers: Sara Landau & Daniel Morris
  • Catering: Esther Freilich
  • Brochure Organiser:  Lawrence Jacobs
  • Marketing: Dr. Tamira King
  • FD Ambassador: Daisy Cohen

Additional Members: Ian Jacobs / James Jacobs / David Obermiester / Ian Pearl  / Moshe King

Patron Member:     Lady Elaine Sacks 

​Lady Sacks has been actively involved in many aspects of the Jewish Community for over 30 years. She takes a particular interest in supporting numerous charities, both Jewish and non-Jewish – including many organisations associated with Jewish education. We are especially  proud to Lady Sacks support, dedication and warmth.