The FD Day 36th Annual virtual conference, run by the New York Centre for Familial Dysautonomia was attended recently by several FD families in June 2021. Our members of our FD-UK community enjoyed and got great value of this years’ annual conference online, where they showcased FD families, discussed FD and their Covid Vaccine research […]
Dr Axelrod was part of our lives for many years. She made FD her total life and with this she brought hope and support to her patients and their families. She researched and gained knowledge over her career which gave the FD patient a better quality of life and with this she was there to support you 24 hours a day 7 days a week.
The FD Day virtual conference, run by the New York Centre for Familial Dysautonomia was attended by several FD families
Our FD-UK Vice Chair Dr Shara Cohen attended the rare disease summit, ‘patients as partners’ a forum at Cambridge University.
From congenital disorders to inherited metabolic diseases, this event, created by FD Vice-chair Dr Shara Cohen, investigated recent developments in an informal academic setting, with an atmosphere conducive to debate and discussion.