Familial Dysautonomia UK is delighted to announce that we have formed a new association with the Maccabi (GB) Southern Football League
Sarah Landau, is currently a Trustee and Treasurer of FD-UK and she has held key positions at FD-UK for the last 25 years. Sara recently won the Jewish Volunteering Network (JVN) lifetime volunteering award for her constant support of FD-UK
Our FD-UK committee member Rosalind Jacobs, responsible for FD-UKs ‘patient communications’ has also been selected as carer governor for UCLH.
During the pandemic our Vice-Chair Dr Shara Cohen has used her digital expertise to recreate our website and make it more intuitive, also creating a new donation wall where you can donate and dedicate to a loved one or in memory of someone, if you wish.
Dr Axelrod was part of our lives for many years. She made FD her total life and with this she brought hope and support to her patients and their families. She researched and gained knowledge over her career which gave the FD patient a better quality of life and with this she was there to support you 24 hours a day 7 days a week.
It is with deep sadness that we would like to take this opportunity to remember the late Chief Rabbi, Lord Dr Jonathan Sacks
We would like to take this opportunity to remember what FD means to our families and community. We would like to take some time to think about the loved ones we have lost to this heartbreaking condition, especially Joshua Fields, who died in July 2020. Our sincere thoughts are with his parents Roger and Julia […]
In March, Eli went on an adventurous trip to Iceland.
This year due to Covid -19 The Maccabi GB Community fun run went online due to lockdown.
The FD Day virtual conference, run by the New York Centre for Familial Dysautonomia was attended by several FD families