In March, Eli went on an adventurous trip to Iceland.
Author: Shara Cohen
Maccabi Fun Run goes virtual during lockdown: FD-UK raised over £3,000
This year due to Covid -19 The Maccabi GB Community fun run went online due to lockdown.
The FD Day Virtual Conference
The FD Day virtual conference, run by the New York Centre for Familial Dysautonomia was attended by several FD families
Rare Disease Summit Report
Our FD-UK Vice Chair Dr Shara Cohen attended the rare disease summit, ‘patients as partners’ a forum at Cambridge University.
FD Families day
We had a magical afternoon for families with FD. Thanking Paul Cavendish, the magician, Esther and Jeffrey and our volunteers and committee for their hard work xx