In March, Eli went on an adventurous trip to Iceland.
This year due to Covid -19 The Maccabi GB Community fun run went online due to lockdown.
The FD Day virtual conference, run by the New York Centre for Familial Dysautonomia was attended by several FD families
Thanks all your support at our annual supper quiz for FD-UK. We raised lots of funds, ate yummy food and even learned a little!
Our FD-UK Vice Chair Dr Shara Cohen attended the rare disease summit, ‘patients as partners’ a forum at Cambridge University.
Bryan King, is a Trustee and co-founder FD-UK and he has held key positions for over 40 years.
The FD cookbook is now available, get your copies for Chanukah gifts now in outlets near you!
FD-UK has a team of 28 runners🏃🏻♀️👏 and walkers 🏅this Sunday 23rd at the GB Maccabi fun run, Allianz Park.
We had a magical afternoon for families with FD. Thanking Paul Cavendish, the magician, Esther and Jeffrey and our volunteers and committee for their hard work xx
Despite the cold, we created a ray of sunshine, raising over £7,000 for the children and adults with Familial Dysautonomia.