Familial Dysautonomia UK is delighted to announce that we have formed a new association with the Maccabi (GB) Southern Football League. The M(GB)SFL is a long-standing organisation and integral part of the Jewish Community for many years and FD-UK is proud to form a new relationship whereby both parties can promote their activities. For FD-UK this represents […]Read More
FD is a genetic disease causing dysfunction of the autonomic and sensory nervous systems.
Due to COVID19 we are restructuring our events. Please check this page for news as it becomes available.
Read our latest adventures as a charity.
We write about what we have been doing to raise awareness and fundraise as well as the latest FD research and news from the families we support,
Sarah Landau, is currently a Trustee and Treasurer of FD-UK and she has held key positions at FD-UK for the last 25 years. Sara recently won the Jewish Volunteering Network (JVN) lifetime volunteering award for her constant support of FD-UK
Our FD-UK committee member Rosalind Jacobs, responsible for FD-UKs ‘patient communications’ has also been selected as carer governor for UCLH.