About Us

​Familial Dysautonomia United Kingdom (FDUK) is a UK charity, set up over 40 years ago to help support sufferers of FD and their families. Formally known as the Dysautonomia Society of Great Britain (DSGB) the charity strives to raise awareness of the condition in the community. Its aim is also to raise money to fund […]

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What is Familial Dysautonomia?

FD is a genetic disease causing dysfunction of the autonomic and sensory nervous systems.


Due to COVID19 we are restructuring our events. Please check this page for news as it becomes available.


We support all people who are of childbearing age and Ashkenazi Jewish decent to be tested.

From Our Blog

Read our latest adventures as a charity.

We write about what we have been doing to raise awareness and fundraise as well as the latest FD research and news from the families we support,

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Maccabi Fun Run goes virtual during lockdown: FD-UK raised over £3,000

This year due to Covid -19 The Maccabi GB Community fun run went online due to lockdown.

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The FD Day Virtual Conference

The FD Day virtual conference, run by the New York Centre for Familial Dysautonomia was attended by several FD families