Dr Axelrod was part of our lives for many years. She made FD her total life and with this she brought hope and support to her patients and their families. She researched and gained knowledge over her career which gave the FD patient a better quality of life and with this she was there to support you 24 hours a day 7 days a week.
It is with deep sadness that we would like to take this opportunity to remember the late Chief Rabbi, Lord Dr Jonathan Sacks
We would like to take this opportunity to remember what FD means to our families and community. We would like to take some time to think about the loved ones we have lost to this heartbreaking condition, especially Joshua Fields, who died in July 2020. Our sincere thoughts are with his parents Roger and Julia […]
In March, Eli went on an adventurous trip to Iceland.
This year due to Covid -19 The Maccabi GB Community fun run went online due to lockdown.
The FD Day virtual conference, run by the New York Centre for Familial Dysautonomia was attended by several FD families
Our FD-UK Vice Chair Dr Shara Cohen attended the rare disease summit, ‘patients as partners’ a forum at Cambridge University.
We had a magical afternoon for families with FD. Thanking Paul Cavendish, the magician, Esther and Jeffrey and our volunteers and committee for their hard work xx