Familial Dysautonomia UK is delighted to announce that we have formed a new association with the Maccabi (GB) Southern Football League
The FD Day 36th Annual virtual conference, run by the New York Centre for Familial Dysautonomia was attended recently by several FD families in June 2021. Our members of our FD-UK community enjoyed and got great value of this years’ annual conference online, where they showcased FD families, discussed FD and their Covid Vaccine research […]
Sarah Landau, is currently a Trustee and Treasurer of FD-UK and she has held key positions at FD-UK for the last 25 years. Sara recently won the Jewish Volunteering Network (JVN) lifetime volunteering award for her constant support of FD-UK
Our FD-UK committee member Rosalind Jacobs, responsible for FD-UKs ‘patient communications’ has also been selected as carer governor for UCLH.