In March, Eli went on an adventurous trip to Iceland.
This year due to Covid -19 The Maccabi GB Community fun run went online due to lockdown.
The FD Day virtual conference, run by the New York Centre for Familial Dysautonomia was attended by several FD families
Thanks all your support at our annual supper quiz for FD-UK. We raised lots of funds, ate yummy food and even learned a little!
Our FD-UK Vice Chair Dr Shara Cohen attended the rare disease summit, ‘patients as partners’ a forum at Cambridge University.
Bryan King, is a Trustee and co-founder FD-UK and he has held key positions for over 40 years.