In March, Eli went on an adventurous trip to Iceland.
Year: 2020
Maccabi Fun Run goes virtual during lockdown: FD-UK raised over £3,000
This year due to Covid -19 The Maccabi GB Community fun run went online due to lockdown.
The FD Day Virtual Conference
The FD Day virtual conference, run by the New York Centre for Familial Dysautonomia was attended by several FD families
Annual Supper Quiz 2019
Thanks all your support at our annual supper quiz for FD-UK. We raised lots of funds, ate yummy food and even learned a little!
Rare Disease Summit Report
Our FD-UK Vice Chair Dr Shara Cohen attended the rare disease summit, ‘patients as partners’ a forum at Cambridge University.
Bryan King won a Lifetime Achievement in Jewish Volunteering Network Award
Bryan King, is a Trustee and co-founder FD-UK and he has held key positions for over 40 years.