Familial Dysautonomia United Kingdom (FDUK) is a UK charity, set up over 40 years ago to help support sufferers of FD and their families.
Formally known as the Dysautonomia Society of Great Britain (DSGB) the charity strives to raise awareness of the condition in the community. Its aim is also to raise money to fund individual medical needs and requirements, as well as pay for specialised doctors to cone to London to hold clinics to assess the FD sufferers as well as guide UK doctors in the specialised expertise.
The Society supports medical research and clinical care by:
• Helping FD children and their families.
• Helping to train UK specialists and therapists in the treatment of dysautonomia.
• Helping to fund research into FD by eminent scientists around the world.
• Bringing the top specialists from abroad to the UK
The Society also provides a continual flow of information to members, parents, professionals and anyone requesting medical, educational or professional information on FD.
The FD UK charity is structured as follows:
Chair: Simeon Cohen
Vice Chair: Dr. Shara Cohen
Joint Treasurers: Sara Landau & Daniel Morris
Secretary: Dr. Jeffrey Freilich
Scientific advisor: Dr. Shara Cohen
Catering: Esther Freilich
Minutes Secretary: Dr. Jeffrey Freilich
Brochure Organiser: Lawrence Jacobs
Marketing: Dr. Tamira King
FD Ambassador: Daisy Cohen
Additional Members: Ian Jacobs / James Jacobs / David Obermiester / Ian Pearl / Moshe King
Trustees: Sara Landau / Anthony Landau / Bryan King
Patron Member: Lady Elaine Sacks
Lady Sacks has been actively involved in many aspects of the Jewish Community for over
30 years. She takes a particular interest in supporting numerous charities, both Jewish and
non-Jewish – including many organisations associated with Jewish education. We are especially
proud to Lady Sacks support, dedication and warmth.
Lady Sacks originally trained and practised as a radiographer, and today teaches and
mentors in Jewish communities throughout the UK and across the world. Taking the
opportunity to continue her studies, she was recently awarded an MSc in Criminology.
She has three children, and is the proud grandmother of several grandchildren